Author Archive | BN:Coded

An Expert’s Opinion on Regorafenib

Oncologist Dr Ramesh Balusi on why Regorafenib must be available for Wild Type GIST and it’s incorrect categorisation on the Cancer Drug Fund list.  In reaction to an interview by Sam and Michelle Waller on BBC Radio Sussex.

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#100000voices

#100000voicesAlthough this website focuses on the plight of Jemma Peacock, there are a number of other people with GIST that will be affected by the decision to remove Regorafenib from the Cancer Drug Fund. Thus GIST Support UK have launched a major campaign to help raise the 100,000 signatures needed to have the decision discussed in parliament. You can join the likes of Russell Brand who recently showed his support for the campaign by using #100000voices on Twitter and any of your other social media posts.

Richard Bassett, 27, pictured above was featured on the BBC’s Look East on the same day as Jemma was featured on BBC’s South Today. His girlfriend, who set up the online petition, also took to the radio and was interviewed by BBC Northampton.

The case of Vicky Rockingham, 43, has also been widely published; most recently by the Mail on Sunday with an article written by Stephen Adams which documented the bizarre situation that Vicky finds herself in. Read the full article online here.

As we enter March with over 9000 signatures the deadline of the end of the month is looming and we really do need #100000voices to try and overturn the decision. Please sign the petition and share it as often as you can, however you can.

 

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Hitting the Right Note

Kiss for GISTWe’re truly overwhelmed by all the support over the last few days. Social media has had a massive impact on the petition and grown the count by hundreds of signatures each day. Many people have been pushing Jemma’s plight on Twitter and it’s always fantastic when a famous person takes the time to promote amazing causes via their own fan base. The music industry have been stepping up to centre stage and performing well by spreading the campaign.

Headlining the list of musicians is Angie Brown, featured vocalist on Bizarre Inc’s track ‘I’m Gonna Get You’, who tweeted “Bless you Jemma x” and reinforced her support by following @PeacockJemma on twitter. Also following Jemma is Jamaican R&B and soul singer Ruby Turner and American band Arrested Development. It’s got to be perfect when Fairground Attraction’s Eddi Reader shows her support along with the writer of Atomic Kitten’s ‘Whole Again’ and OMD drummer Stuart Kershaw, Shelly Poole from Alisha’s Attic, The Lotus Eaters and folk legend Eliza Carthy MBE.

With their help and the help of so many others we have reached over 6000 signatures, but we still need so many more. Please take the time to join the crowd and sign the petition to try and reinstate the life giving cancer drug Regorafenib (Stivarga®).

The support from the music world saw one follower, @AndyDekka, tweet: “Just noticed @peacockjemma has nearly enough musicians following & supporting her for an episode of Top Of The Pops! #Regorafenib”

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A short message from BN:Coded

We have never met Jemma, we had never heard of GIST before, or the withdrawal of the drug Regorafenib.

But, since hearing Jemma’s story, learning about GIST and the NHS cutbacks, we felt compelled to create this website free of charge and in 48 hours to give her an online platform for her campaign. We would love to see the drug reinstated via the online petition.

We hope Jemma never feels alone in her battle with cancer, the world wide web is a big place but with social media it is an even bigger community, let’s all support her. BN:Coded have done what we can do by building this site, now it is up to everyone else to rally round, sign the petition, donate money or do whatever they can to help.

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