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Michelle Waller meets Rt Hon Sir Nicholas Soames

Rt Hon Sir Nicholas Soames meets Michelle Waller, wife of Sam

Rt Hon Sir Nicholas Soames meets Michelle Waller, wife of Sam

This evening I met with MP Nicholas Soames at his surgery in Haywards Heath. It was good to finally meet him in person after he spoke so eloquently on BBC Radio Sussex for our campaign. Nicholas congratulated me on the success of gaining 100,000 voices and said he is fully prepared to support me and Sam going forward.

Nicholas informed me that with the House soon closing down due to the general election there will not be time to discuss the issue in the House of Commons before the general election. However, the Secretary of Health will still be responding to questions during this time so Nicholas has emailed him regarding the issue and is awaiting a response. He will also seek the opinion of Minesh Patel (Clinical Chair of Horsham and Mid-Sussex Clinical Commissioning Group, and also the Vice Chair of the West Sussex Health and Wellbeing Board) in a meeting scheduled for next week.

Nicholas asked me to email him over some further information so I have sent him the opinion of Professor Ian Judson (Head of Sarcoma Unit and Professor of Cancer Pharmacology at The Royal Marsden) and the BBC Radio Sussex interview with Dr Ramesh Balusi (leading Gist specialist). I have just seen he tweeted soon after I left “So pleased to meet amazing Michelle Waller about her campaign to secure drug for her brave husband Sam.” Nicholas said he will be back in contact with me soon – I will keep you posted.

Michelle x

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Professor Ian Judson’s Opinion

In response to regorafenib’s removal Professor Ian Judson, Head of the Sarcoma Unit at The Royal Marsden Hospital and Chair of the GIST Support UK Medical Advisory Board, stated: “The Cancer Drugs Fund was initially set up to give access to drugs deemed not to be cost effective by NICE, which has not appraised regorafenib for cost-effectiveness in this setting. The CDF press release says that they will not remove drugs from the list that are the only drug available for a given disease. However, regorafenib is the only treatment for GIST that is resistant to imatinib and sunitinib.”

Source: GIST Support UK Press Release 16-01-2015

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