Author Archive | Jemma Peacock

Meet Sam Waller

Read the latest press release here.

GIST Support UK describe themselves as the club no-one wants to join. They’re right. One of the hardest things with such a rare form of cancer is the feeling of being alone. GIST Support UK does a great job of joining people together in similar situations, but you still have moments feeling solitary and isolated.

Sam Waller GIST #100000voices

Sam Waller, 35, with his family

Over the last month with the campaign to reinstate Regorafenib I have been amazed and humbled by the support of everyone, friends and strangers. My tweets, posts and messages cannot ever truly pass on my gratitude to everyone involved and everyone who has signed the petition. I know I am not alone and I cannot stress enough that this campaign will affect other people if we can get the decision reversed. These are young people: Mums, Dads, Sisters and Brothers, and we are all battling GIST, we shouldn’t also be battling the NHS Cancer Drug Fund for precious extra quality time with our families. As you will have read in the local press, all I want is to see my two daughters grow up.

Last week I received an email from a mum of two, whose husband has been fighting GIST for the last four-and-a-half years. Sam Waller is from a nearby town, East Grinstead in Sussex. He has two boys, Joseph and Henry, and I am delighted that we are combining our efforts to maximise the exposure of this campaign. Other GISTers, as we call ourselves, are also doing their bit on social media, look out for the #100000voices on Twitter and Facebook and be sure to interact with it, it really does help.

If you would like to find out more about Sam please read the older press release on this site by clicking here.
Follow his wife @WallerMich on Twitter here.


See Sam Waller and his family on BBC South East Today here.

Here’s a plea from one of Sam’s friends on Facebook, it’s worth a watch:

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Press Gang for Petition

Over the last few days the local newspapers have shown their support by helping to raise the awareness for the petition to reinstate Regorafenib.

Local Papers feature Jemma PeacockThe South Downs edition of the West Sussex County Times dedicated the front page to the campaign under the headline ‘Mother’s battle for cancer drugs’. The story continued over the page with further reporting by James Oxenham on the withdrawal of the life-prolonging drug and Jemma’s plight. Read the full article online here.

Not to be outdone, The Argus, dedicated a double-page centrefold to the campaign by Health Reporter Siobhan Ryan. The headline story ‘I want to be able to see my girls grow up’ was surrounded with related articles and referenced to on the front page. Read the full article online here.

The Sussex Herald series of newspapers also picked up on the story with Faye Tate writing the article ‘Mum’s petition to get cancer drug reinstated’. Read the full article online here.

The call to action in print has been reflected in signatures and today the petition reached over 7000 signatures.

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Want to do more?

Kiss for GISTThe support shown has been staggering. Incredibly people keep asking what more can they do?

Well at the moment our primary objective is still getting signatures on the petition. So anything you can do via Facebook, Twitter or any other form of social media to spread the word would be amazing. Tell your work colleagues, people down the pub, customers, any time you mention the petition is another potential signature. If every signatory got ten more people to sign we would achieve the magic target of 100,000.

Twitter is brilliant but ephemeral, tweets come and go, so the more the better, using retweets and favouriting tweets helps spread the word too! You can follow Jemma here.

With Facebook it is about interacting with posts. BN:Coded have posted a few images to help spread the campaign on Facebook. Sharing, liking and commenting on these will help maintain them in people’s news feeds. This organically grows the reach of a single post among your friends, their friends and then further, there is also no harm in sharing things twice or creating your own post in your own words.

Still want to do more? Well, GIST Support UK  have created this MP Letter Template that you can use to write to your local MP and ask for their support in re-instating Regorafenib to the Cancer Drugs Fund list for GIST patients. We thank GIST Support UK for their efforts.

There is also the fund raising page, http://www.gofundme.com/ma2i0w, if you feel like you could spare some funds for this very worthy cause. Money raised will be put aside to help towards funding Jemma’s medication if we are unable to get it back onto the NHS. If we are successful through the petition then the funds raised will be donated to GIST Support UK to help all sufferers.

Do you know anyone in the media? Direct them to our press release, any coverage would be most welcome!

We have had great success getting Jemma in the local press (see them here), if you visit the websites and comment and interact on the articles they keep them current on the websites – this is really beneficial too.

Thank you for all that you have done and for wanting to help.

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Mini Milestone

So much has happened in such a short space of time, BBC South Today, a Facebook and Twitter campaign and a new website. Today, after just a few days we are halfway to reaching our initial target. We would so love to get to 10,000 signatures on the all important petition and then march on from there.

We have also posted a press release and would be grateful if anyone has any contacts to make them aware of that!

Thank you for all your support and please continue to help spread the word however you can for Jemma and other GIST sufferers.

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Support from the World of Sport

Football, cricket, rugby, in fact all sports have one thing in common – fans.

These fans are often referred to as supporters and that is exactly what the campaign for GIST cancer sufferers urgently needs, support. So it’s great to see sports personalities and fans back the campaign and spread the world for the petition to reinstate Regorafenib on the Cancer Drugs Fund list.

So far Carlton Palmer, has tweeted his support. The ex-premier league footballer and England International does a lot for charity and is hoping to raise £1m for Cavendish Cancer Care this year. Ex-cricketer David ‘Bumble’ Lloyd, the Sky Sports commentator has also tweeted his support.

The Brighton and Hove Albion fans are also doing there bit by posting on the North Stand Chat forum (see below). Everyone’s support is much appreciated.

 

NorthStandChat

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