Well at the moment our primary objective is still getting signatures on the petition. So anything you can do via Facebook, Twitter or any other form of social media to spread the word would be amazing. Tell your work colleagues, people down the pub, customers, any time you mention the petition is another potential signature. If every signatory got ten more people to sign we would achieve the magic target of 100,000.
Twitter is brilliant but ephemeral, tweets come and go, so the more the better, using retweets and favouriting tweets helps spread the word too! You can follow Jemma here.
With Facebook it is about interacting with posts. BN:Coded have posted a few images to help spread the campaign on Facebook. Sharing, liking and commenting on these will help maintain them in people’s news feeds. This organically grows the reach of a single post among your friends, their friends and then further, there is also no harm in sharing things twice or creating your own post in your own words.
Still want to do more? Well, GIST Support UK have created this MP Letter Template that you can use to write to your local MP and ask for their support in re-instating Regorafenib to the Cancer Drugs Fund list for GIST patients. We thank GIST Support UK for their efforts.
There is also the fund raising page, http://www.gofundme.com/ma2i0w, if you feel like you could spare some funds for this very worthy cause. Money raised will be put aside to help towards funding Jemma’s medication if we are unable to get it back onto the NHS. If we are successful through the petition then the funds raised will be donated to GIST Support UK to help all sufferers.
Do you know anyone in the media? Direct them to our press release, any coverage would be most welcome!
We have had great success getting Jemma in the local press (see them here), if you visit the websites and comment and interact on the articles they keep them current on the websites – this is really beneficial too.
Thank you for all that you have done and for wanting to help.