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Press Gang for Petition

Over the last few days the local newspapers have shown their support by helping to raise the awareness for the petition to reinstate Regorafenib.

Local Papers feature Jemma PeacockThe South Downs edition of the West Sussex County Times dedicated the front page to the campaign under the headline ‘Mother’s battle for cancer drugs’. The story continued over the page with further reporting by James Oxenham on the withdrawal of the life-prolonging drug and Jemma’s plight. Read the full article online here.

Not to be outdone, The Argus, dedicated a double-page centrefold to the campaign by Health Reporter Siobhan Ryan. The headline story ‘I want to be able to see my girls grow up’ was surrounded with related articles and referenced to on the front page. Read the full article online here.

The Sussex Herald series of newspapers also picked up on the story with Faye Tate writing the article ‘Mum’s petition to get cancer drug reinstated’. Read the full article online here.

The call to action in print has been reflected in signatures and today the petition reached over 7000 signatures.

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Hitting the Right Note

Kiss for GISTWe’re truly overwhelmed by all the support over the last few days. Social media has had a massive impact on the petition and grown the count by hundreds of signatures each day. Many people have been pushing Jemma’s plight on Twitter and it’s always fantastic when a famous person takes the time to promote amazing causes via their own fan base. The music industry have been stepping up to centre stage and performing well by spreading the campaign.

Headlining the list of musicians is Angie Brown, featured vocalist on Bizarre Inc’s track ‘I’m Gonna Get You’, who tweeted “Bless you Jemma x” and reinforced her support by following @PeacockJemma on twitter. Also following Jemma is Jamaican R&B and soul singer Ruby Turner and American band Arrested Development. It’s got to be perfect when Fairground Attraction’s Eddi Reader shows her support along with the writer of Atomic Kitten’s ‘Whole Again’ and OMD drummer Stuart Kershaw, Shelly Poole from Alisha’s Attic, The Lotus Eaters and folk legend Eliza Carthy MBE.

With their help and the help of so many others we have reached over 6000 signatures, but we still need so many more. Please take the time to join the crowd and sign the petition to try and reinstate the life giving cancer drug Regorafenib (Stivarga®).

The support from the music world saw one follower, @AndyDekka, tweet: “Just noticed @peacockjemma has nearly enough musicians following & supporting her for an episode of Top Of The Pops! #Regorafenib”

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Mini Milestone

So much has happened in such a short space of time, BBC South Today, a Facebook and Twitter campaign and a new website. Today, after just a few days we are halfway to reaching our initial target. We would so love to get to 10,000 signatures on the all important petition and then march on from there.

We have also posted a press release and would be grateful if anyone has any contacts to make them aware of that!

Thank you for all your support and please continue to help spread the word however you can for Jemma and other GIST sufferers.

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Support from the World of Sport

Football, cricket, rugby, in fact all sports have one thing in common – fans.

These fans are often referred to as supporters and that is exactly what the campaign for GIST cancer sufferers urgently needs, support. So it’s great to see sports personalities and fans back the campaign and spread the world for the petition to reinstate Regorafenib on the Cancer Drugs Fund list.

So far Carlton Palmer, has tweeted his support. The ex-premier league footballer and England International does a lot for charity and is hoping to raise £1m for Cavendish Cancer Care this year. Ex-cricketer David ‘Bumble’ Lloyd, the Sky Sports commentator has also tweeted his support.

The Brighton and Hove Albion fans are also doing there bit by posting on the North Stand Chat forum (see below). Everyone’s support is much appreciated.

 

NorthStandChat

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Professor Ian Judson’s Opinion

In response to regorafenib’s removal Professor Ian Judson, Head of the Sarcoma Unit at The Royal Marsden Hospital and Chair of the GIST Support UK Medical Advisory Board, stated: “The Cancer Drugs Fund was initially set up to give access to drugs deemed not to be cost effective by NICE, which has not appraised regorafenib for cost-effectiveness in this setting. The CDF press release says that they will not remove drugs from the list that are the only drug available for a given disease. However, regorafenib is the only treatment for GIST that is resistant to imatinib and sunitinib.”

Source: GIST Support UK Press Release 16-01-2015

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