Archive | Sam Waller

Michelle Waller meets Rt Hon Sir Nicholas Soames

Rt Hon Sir Nicholas Soames meets Michelle Waller, wife of Sam

Rt Hon Sir Nicholas Soames meets Michelle Waller, wife of Sam

This evening I met with MP Nicholas Soames at his surgery in Haywards Heath. It was good to finally meet him in person after he spoke so eloquently on BBC Radio Sussex for our campaign. Nicholas congratulated me on the success of gaining 100,000 voices and said he is fully prepared to support me and Sam going forward.

Nicholas informed me that with the House soon closing down due to the general election there will not be time to discuss the issue in the House of Commons before the general election. However, the Secretary of Health will still be responding to questions during this time so Nicholas has emailed him regarding the issue and is awaiting a response. He will also seek the opinion of Minesh Patel (Clinical Chair of Horsham and Mid-Sussex Clinical Commissioning Group, and also the Vice Chair of the West Sussex Health and Wellbeing Board) in a meeting scheduled for next week.

Nicholas asked me to email him over some further information so I have sent him the opinion of Professor Ian Judson (Head of Sarcoma Unit and Professor of Cancer Pharmacology at The Royal Marsden) and the BBC Radio Sussex interview with Dr Ramesh Balusi (leading Gist specialist). I have just seen he tweeted soon after I left “So pleased to meet amazing Michelle Waller about her campaign to secure drug for her brave husband Sam.” Nicholas said he will be back in contact with me soon – I will keep you posted.

Michelle x


An Expert’s Opinion on Regorafenib

Oncologist Dr Ramesh Balusi on why Regorafenib must be available for Wild Type GIST and it’s incorrect categorisation on the Cancer Drug Fund list.  In reaction to an interview by Sam and Michelle Waller on BBC Radio Sussex.


Meet Sam Waller

Read the latest press release here.

GIST Support UK describe themselves as the club no-one wants to join. They’re right. One of the hardest things with such a rare form of cancer is the feeling of being alone. GIST Support UK does a great job of joining people together in similar situations, but you still have moments feeling solitary and isolated.

Sam Waller GIST #100000voices

Sam Waller, 35, with his family

Over the last month with the campaign to reinstate Regorafenib I have been amazed and humbled by the support of everyone, friends and strangers. My tweets, posts and messages cannot ever truly pass on my gratitude to everyone involved and everyone who has signed the petition. I know I am not alone and I cannot stress enough that this campaign will affect other people if we can get the decision reversed. These are young people: Mums, Dads, Sisters and Brothers, and we are all battling GIST, we shouldn’t also be battling the NHS Cancer Drug Fund for precious extra quality time with our families. As you will have read in the local press, all I want is to see my two daughters grow up.

Last week I received an email from a mum of two, whose husband has been fighting GIST for the last four-and-a-half years. Sam Waller is from a nearby town, East Grinstead in Sussex. He has two boys, Joseph and Henry, and I am delighted that we are combining our efforts to maximise the exposure of this campaign. Other GISTers, as we call ourselves, are also doing their bit on social media, look out for the #100000voices on Twitter and Facebook and be sure to interact with it, it really does help.

If you would like to find out more about Sam please read the older press release on this site by clicking here.
Follow his wife @WallerMich on Twitter here.

See Sam Waller and his family on BBC South East Today here.

Here’s a plea from one of Sam’s friends on Facebook, it’s worth a watch:


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