Please explore the links below for related content, charities, support and further information:
Reinstate Regorafenib on the Cancer Drugs Fund list e-petition
The online petition for the reinstatement of Regorafenib on the Cancer Drugs Fund list
Kiss for GIST Fund Raising Page
Please donate if you can, the money raised will be put aside to help towards funding Jemma’s medication if we are unable to get it back onto the NHS. If we are successful through the petition then the funds raised can be donated to GIST Support UK.
GIST Support UK
A website for GIST patients and their carers with latest news and a helpline. Valuable source material, patient stories fund raising and press releases also available.
GIST Support UK MP Letter Template
Please write to your MP and ask for their support in re-instating Regorafenib to the Cancer Drugs fund for GIST patients. The deadline is fast appraoching. This drug works for GIST patients and patients lives depend upon it.
The bone and soft tissue cancer charity dealing with this type of rare cancer.
Global GIST Network
The Global GIST Network is a directory of resources available to GIST patients and their families in their own countries and languages.
The Pamela Northcott Fund
A unique voluntary organisation providing advocacy and support to cancer patients denied access to new drug therapies yet to be approved by NICE or refused by NICE.
Medical article on the efficacy and safety of regorafenib.
Lord Phil Hunt via House of Lords, Labour
Article written by Lord Phil Hunt on the government’s changed policy towards rare cancer sufferers.
Cancer Research UK
World’s leading charity dedicated to beating cancer through research.
Macmillan Cancer Support
Cancer support charity with an ambition to reach and improve the lives of everyone living with cancer and to inspire millions of others to do the same.
Rarer Cancers Foundation
Rarer Cancers Foundation, the National Voice of Rarer Cancers, response to Cancer Drugs Fund announcement.
The Life Raft Group
Article on Stivarga/Regorafenib withdrawal from Cancer Drug Fund endangering GIST patients.
Your Space Today
A private counselling service in Storrington, West Sussex.
Built, hosted and provided domains and emails for this website free of charge. BN:Coded wrote a blog post in support of the campaign. They also created a big button for the petition just as requested!