This evening I met with MP Nicholas Soames at his surgery in Haywards Heath. It was good to finally meet him in person after he spoke so eloquently on BBC Radio Sussex for our campaign. Nicholas congratulated me on the success of gaining 100,000 voices and said he is fully prepared to support me and Sam going forward.
Nicholas informed me that with the House soon closing down due to the general election there will not be time to discuss the issue in the House of Commons before the general election. However, the Secretary of Health will still be responding to questions during this time so Nicholas has emailed him regarding the issue and is awaiting a response. He will also seek the opinion of Minesh Patel (Clinical Chair of Horsham and Mid-Sussex Clinical Commissioning Group, and also the Vice Chair of the West Sussex Health and Wellbeing Board) in a meeting scheduled for next week.
Nicholas asked me to email him over some further information so I have sent him the opinion of Professor Ian Judson (Head of Sarcoma Unit and Professor of Cancer Pharmacology at The Royal Marsden) and the BBC Radio Sussex interview with Dr Ramesh Balusi (leading Gist specialist). I have just seen he tweeted soon after I left “So pleased to meet amazing Michelle Waller about her campaign to secure drug for her brave husband Sam.” Nicholas said he will be back in contact with me soon – I will keep you posted.