Meet Sam Waller

Read the latest press release here.

GIST Support UK describe themselves as the club no-one wants to join. They’re right. One of the hardest things with such a rare form of cancer is the feeling of being alone. GIST Support UK does a great job of joining people together in similar situations, but you still have moments feeling solitary and isolated.

Sam Waller GIST #100000voices

Sam Waller, 35, with his family

Over the last month with the campaign to reinstate Regorafenib I have been amazed and humbled by the support of everyone, friends and strangers. My tweets, posts and messages cannot ever truly pass on my gratitude to everyone involved and everyone who has signed the petition. I know I am not alone and I cannot stress enough that this campaign will affect other people if we can get the decision reversed. These are young people: Mums, Dads, Sisters and Brothers, and we are all battling GIST, we shouldn’t also be battling the NHS Cancer Drug Fund for precious extra quality time with our families. As you will have read in the local press, all I want is to see my two daughters grow up.

Last week I received an email from a mum of two, whose husband has been fighting GIST for the last four-and-a-half years. Sam Waller is from a nearby town, East Grinstead in Sussex. He has two boys, Joseph and Henry, and I am delighted that we are combining our efforts to maximise the exposure of this campaign. Other GISTers, as we call ourselves, are also doing their bit on social media, look out for the #100000voices on Twitter and Facebook and be sure to interact with it, it really does help.

If you would like to find out more about Sam please read the older press release on this site by clicking here.
Follow his wife @WallerMich on Twitter here.


See Sam Waller and his family on BBC South East Today here.

Here’s a plea from one of Sam’s friends on Facebook, it’s worth a watch:

9 Responses to Meet Sam Waller

  1. Ross Nash 10th March 2015 at 7:46 AM #

    Every body deserves a fighting chance in life. Having gone though cancer with my partner I understand how important it is for every resource to be available.

  2. Will McAlpine 10th March 2015 at 8:29 AM #

    Sign it – help Sam and others have a fighting chance of beating cancer…

  3. peter farquhar 12th March 2015 at 12:13 AM #

    Smashed it out on twitter and will continue to do so, sam deserves all the help he can get, that kid with the big smile at school will keep on smiling with our help, great guy good luck sam

  4. Helen Dixon 14th March 2015 at 5:10 PM #

    I really hope this does the trick I have known Sue Sam’s mum for 35years my son Chris is a day younger than Sam I can’t imagine what they are going through and if this drug helps he should have it

  5. Glenn Byles 16th March 2015 at 8:28 PM #

    You have my support

  6. Emma Louise Baxter 17th March 2015 at 7:05 AM #

    Everyone has the right to mediation and a second chance at life. My partner was diagnosed last year with prostate cancer at 40, we were one of the lucky ones. We pay our taxes, give sam the drugs he needs to see his boys grow up and grow old with his wife. Xx

  7. Jordan Turner 18th March 2015 at 7:23 AM #

    I hope this helps sam all the best were all routing for you good luck x #cpfc #helpsavesam

  8. Luke murphy 18th March 2015 at 1:39 PM #

    Good luck Sam, fellow eagle.

  9. Ann Hilton. 18th March 2015 at 10:39 PM #

    Good luck Same..

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